Friday, March 7, 2014

Uterine Prolapse -- I'm a Little Obsessed

Last week I wrote about how much I've been hurting, that I was going to see the doctor, and that I was afraid I'd need surgery or they'd find nothing wrong and I'd get no answers.

Well, I did get an answer and I do need surgery.

I have uterine prolapse.  Prolapse means to fall out of place.  Basically, my uterus is falling out.

Take a minute to wrap your brain around that.  An internal part of my body is no longer where it's supposed to be and is on a path that will eventually take it outside of me.  Yeah, kind of funny and creepy at the same time.

And I'm having difficulty thinking about anything else.

I meet with the surgeon on April 23.  We'll discuss my options then.  But, of course, I've already researched it a ton online.

It used to be that the standard answer to this problem was a hysterectomy.  Now there is an option for reparative surgery, much like a hernia repair.  There are pros and cons to both options and several types of hysterectomies possible.  My brain is swimming with possibilities and trying to anticipate the negatives of every choice possible.

But I can't decide anything until I get more specifics on my case when I meet with the surgeon.  In six and a half weeks.  Doesn't that seem like a long time?

It does to me, too.  But that was his first opening for a consult and I've heard good things about him and my life doesn't facilitate surgery any time in the next month anyway, so I'm sticking with that plan.

But I have to find a way to pay attention to other things.

Okay, so I only found out four days ago.  I guess it's okay to take some time to adjust.  At least I've noticed that I'm not attending to anything else.  Maybe that's the first step.

So tomorrow I'll start making a list of the things I think of that I need to pay attention to.  And I'll try to pay attention to at least one thing a day that doesn't involve my uterus.  But I think it's unrealistic to expect that I can just move on with life and forget about it.

Because it still hurts.  And it's not where it's supposed to be.  And that kind of freaks me out.


The Dose of Reality said...

Hang in there Robin! If you want to look at it as a glass if half full moment then think about the fact that they do not consider it emergent if they are willing to wait 6 weeks to see you. :)-Ashley

EstheticGoddess said...

Robin, I am so glad you at least have an answer. My best friend has this and has been walking around with it for about 4 years now. I wish she would have surgery for it but her fear is holding her back.

Rubye Jack said...

Be careful in the choices you make. Years ago, maybe 10, I was told the same thing and then a couple of years later they said no, it's not your uterus but rather the bladder that is falling out. They wanted to do that surgery where they tie things together but I decided to give it some more time. Oh yeah, a couple of doctors over the years wanted to do a hysterectomy but I said no to that also, and today I am fine. Exercises work miracles and I've known women who have had complications from these kinds of surgeries. Also, weight made a big difference for me.

Unknown said...

I hope everything goes well. I am curious about the procedure as well.

Chris Carter said...

Do you know that my dearest friend had THIS happen to her? Her uterus was literally hanging out of her...she had to wait for a few weeks for surgery, where she did get a full hysterectomy. I don't know how old you are, but my friend had already had her children and was in her fifties-

I am now praying for you, my dear friend. Oh my heart- you have been through so much!!!

Sum of their Stories said...

I think 6 1/2 weeks is good as it gives you plenty of time to let this news marinate. Be warned that looking on the internet for any health problem can be frightening (my doctor advised against it apart from the most trustworthy sites!) Don't frighten yourself, you are not the first person this has happened too so the doctors will know what to do. I was told a few months ago I'll need a hysterectomy at some point (for different reasons) and I'm just digesting that news for a bit as apparently it's not desperately urgent, more of a quality of life thing.
Take your time, get all your questions ready, choose what is right for you, I hope it all goes well - whatever you decide.

Lucy said...

Most definitely alarming. Hopefully your doc sent you home with some good drugs! lol In all seriousness, weigh your options carefully and if you are still uncertain, ask for a second opinion. said...

What Julie said - excellent advice by the way.

Six weeks will give you time to think it through and figure out what you want to do. Wish you weren't in pain, though.

Jessica @ Independent Travel Cats said...

Sorry to hear this Robin, but at least you now know what is wrong. I hope the consultation with the surgeon goes well!

The Seana Method said...

That is just no fun, Robin. I'm sorry... and I totally understand your inability to think about anything else. 6 weeks does seem long, but usually the really top specialists have a long waiting time, so maybe it indicates good things! Praying for you - I was going to say "hang in there" but maybe that would just make things worse:)

Suzanne said...

Six weeks IS a long time to wait. I'm so sorry this is happening to you. At least you have some answers, and maybe a little comfort from the comments above that this has happened to other women. I hope these six weeks go by as quickly as possible.

Mothering from Scratch said...

{Melinda} I'm so sorry, Robin. Truly. I have had a rough couple months with health issues and dilemmas so I truly feel your pain. I pray that God gives you wisdom as you make these decisions. <3

Bethany said...

So sorry to hear this! Good luck with your decision!

Stopping by from SITS.

Chris Carter said...

You know my friend had hers HANGING OUT of her!!! She could barely walk... she had to move 'slow' and agonizingly so.

How's that for perspective? :)

hang in there sweetie... I love your idea and your goals for stretching yourself beyond yourself. You can DO THIS.

And really? After the life you have lived- this? Cake.


Unknown said...

I totally understand. It feels like you can't really trust your body anymore. I wish you strength and plenty of hope when you need it. I have been struggling with my health this year as well. So I feel your pain. Wishing you the best!

Dame Nuisance said...

You are allowed to be a little obsessed and self-involved on this. It's a big deal. Agree that 6 weeks is a very long time to wait to see the surgeon - especially when you're in pain - but I know from my own experiences with medical issues that everything takes longer than we'd like. Wishing you a good outcome. Stopping by from SITS.

Unknown said...

Six weeks is a long time. But on the bright side at least they don't consider it an emergency. Hang in there robin.